Living With MS

Discussing all aspects of Multiple Sclerosis, various treatments, including accurate information regarding Tysabri.

Thursday, November 27, 2008

My Tysabri Diary...

28th Tysabri Infusion Report & A Happy Thanksgiving Message...,I got home late yesterday afternoon from my 28th Tysabri infusion, everything went fine and nothing new to report other than feeling a little tired..., so I went to bed early last night.

I wanted to wish everyone a very happy Thanksgiving, and below are some thoughts that I want to dedicate to my wonderful friends who touch my life with the treasure of their being... May your soul decisions always be made with your heart, and not your head. (the words below were shared with me by a friend, and I wanted to share them with you as well).

Happy Thanksgiving Everyone! Lauren :)

1. Don't go for looks, they can deceive. Don't go for wealth, even that fades away. Go for someone who makes you smile.

2. There are moments in life when you can miss someone so much that you want to pick them up from your dreams and hug them. I hope you dream of that someone.

3. Dream what you want to dream, go where you want to go, be what you want to be, because you have only one life and one chance to do all the things you want in life.

4. May you have: Enough happiness to make you sweet
Enough trials to make you strong
Enough sorrow to keep you human
Enough hope to make you happy
And enough money to keep you comfortable

5. When one door of happiness closes, another opens. But we often look so long at the closed door, that we don't see the one which has been opened for us

6. The best kind of friend is the one you can sit on a porch with, swing with, never saying a word and then walk away feeling like that was the best conversation you've ever had

7. It's true that we don't know what we have until we lose it, but it's also true that we don't know what we've been missing until it arrives

8. Always put yourself in others' shoes. If you feel that it hurts you, it probably does hurt the other person too

9. Every careless word may kindle a strife
A cruel word may wreck a life
A timely word may level stress
A lovely word may heal and bless

10. The beginning of love is to let those we love be perfectly themselves and not twist them with our image otherwise we love only the reflection of ourselves we find in them

11. The happiest people don't necessarily have the best of everything, they just make the most of everything that comes along the way

12. Maybe God wants us to meet a few wrong people before meeting the right one so that when we finally meet the right person, we should know how to be grateful for that gift

13. It takes a minute to have a crush on someone, an hour to like someone, and a day to love someone, but it takes a lifetime to forget someone special

14. Happiness lies for those who cry, those who hurt, those who have searched and those who have tried. For only they can appreciate the importance of people who have touched their lives

15. Love is when you take away the feeling, the passion, the romance and find out you still care for that person

16. A sad thing about life is that when you meet someone who means a lot to you and then only to find out in the end that it was never meant to be and you just have to let go

17. Love starts with a smile, develops with a kiss, and ends with a tear

18. Love comes to those who still hope even though they've been disappointed, to those who still believe even though they've been betrayed, to those who still need to love, even though they've been hurt before

19. It hurts to love someone, and not be loved in return but what is most painful is to love someone and never find the courage to let the person know how you feel

20. The brightest future will always be based on a forgotten past. You can't go on well in life until you let go of your past failures and heartaches

21. Never say goodbye when you still want to try;
Never give up when you still feel you can take it;
Never say you don't love that person anymore when you can't let go

22. Giving someone all your love is never an assurance that they'll love you back. Don't expect love in return, just wait for it to grow in their hearts, but if it doesn't, be content it grew in yours

23. There are things you love to hear but you might never hear it from the person whom you would like to hear it from, but don't be deaf to hear it from the person who says it with all their heart

24. When you were born, you were crying and everyone around you was smiling. Live your life to the fullest so that when you die, you're smiling and everyone around you is crying

Author Unknown

Here is a really nice Thanksgiving card from Jacquie Lawson (this was shared with me by my friend Cyndee..., Yum!):


  • At 2:07 PM, Blogger Denver Refashionista said…

    Sage words. Have a great day.

  • At 3:41 AM, Anonymous Anonymous said…

    Here are some beautiful, artistic Thanksgiving ecards for Thanksgiving, include some from Jacquie Lawson.

  • At 9:45 AM, Blogger paul1149 said…

    Thanks Lauren. All the best to you.

  • At 11:54 PM, Anonymous Angie said…

    Hi Lauren! I just had my 29th infusion today. I have reservations about continuing. I have an 8 yr old de and 5 yr old de and I would like to see them grow up. This is where I have to decide between death and disability. How have you managed to reconcile the chance of contracting PML? The information about this drug has changed alot since we first started and there is not much out there for those of us with over two years worth of infusions. Thanks for any info you have.

  • At 1:10 PM, Blogger Lauren said…

    Thank you Denver & Paul..., right back at the two of you.

    Hi again Angie, congrats on infusion 29!

    You said, "This is where I have to decide between death and disability. How have you managed to reconcile the chance of contracting PML?"

    Oh Angie, dearheart, I believe the problem is you don't understand why PML develops... it develops in severely immune compromised patients...additionally, my immune system never becomes severely immune suppressed, so I don't worry about PML.

    If you think about it, why hasn't PML developed in all of the Tysabri trial patients that are going on their 64th, 65th, 66th, etc. Tysabri infusions? I believe it is because they never were (and still aren't) severely immune suppressed.

    Each of the patients that developed PML were previously immune compromised prior to starting Tysabri therapy and/or became severely immune compromised due to having a drug interaction from other medications they had been/were on, such as Avonex, Remicade, Imuran/Azathioprine, Methotrexate, and even regular steroids, etc.

    Furthermore, there have been NO deaths from PML associated with Tysabri therapy other than the two trial patients so very long ago and neither one of them had MS.

    Not one single MS patient using Tysabri as a monotherapy (by itself) that was never immune compromised has ever developed PML.

    This is why most neurologists don't believe in allowing their Tysabri patients to have a "drug holiday" as they don't want to put them at risk for needlessly suffering further relapses & disability.

    With over 35,500 patients currently on Tysabri therapy, the initial risk factor for developing PML as calculated by the FDA (0.1% in 1000) is actually much, much lower than that now.

    Lastly, most MS patients have a very active/strong immune system which is why relapses still occur, it is just the nature of the disease called MS.

    Hope this information helps dearheart... take care Angie and I hope you & your family have a wonderful Christmas!

    Lauren :)

  • At 8:22 PM, Blogger Angela Molden said…

    Thank you for the information. I will be reviewing it with my Neuro. I am trying to make a logical decision not one based on fear.
    Merry Christmas!

  • At 7:26 AM, Blogger herrad said…

    Take care and keep warm and happy
    Have a happy Winter Solstice and a great Christmas.





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