Living With MS

Discussing all aspects of Multiple Sclerosis, various treatments, including accurate information regarding Tysabri.

Wednesday, July 21, 2010




My Tysabri Diary...


Hi everyone, I recently had the pleasure of speaking with the founder of "Fly for MS",
Andrei Floroiu, and I am proud to inform anyone interested in MS awareness (i.e., MS patients, caregivers, family members of MS patients, friends of MS patients, the medical community, etc.) that there is a fantastic site entitled "Fly for MS" which can be found by going to:

http://www.flyms.org/index.html

"Fly for MS"
is a record-making endeavor meant to raise awareness for multiple sclerosis (MS) in the US and Europe. Their pilots will take off from New York aboard a small plane for a trans-Atlantic journey spanning 20,000 miles (32.000 km), almost enough to circle the globe, taking them to 27 countries in five weeks. The undertaking will be very challenging for both man and machine: fewer than 300 people have flown a small plane for such a distance on a single journey, compared to over 4,100 successful climbs on Mt. Everest.

Also, their FaceBook group is up as well; just search for "Fly for MS", click "like".

During the journey, they will fly for treatment MS patients who cannot reach distant MS centers, and share the joy of flying with other patients.


Also, they will offer broader audiences concomitant online broadcasts and traditional media coverage of the fascinating sights and diversity, the happiness and human drama, and the very real challenges and risks they will encounter. The endeavor will be recorded in real-time by one of their crew, a noted photographer, journalist, and director.


Their website goes on to state: "MS is in dire need of increased awareness. It is an "invisible" disease caught in a vicious circle: public ignorance forces MS sufferers to withdraw, thus becoming invisible to the rest of us, perpetuating the ignorance. Our headline-grabbing endeavor will generate the public opinion impact needed to inform and to get governments, employers and society in general to change their attitudes towards MS sufferers. We will also inspire and give hope to those touched by MS."

I would highly encourage everyone that has been touched by MS to visit their website. They now have all the largest MS organizations in both the US and Europe, at the highest levels, supporting their effort.


God bless those that actually cared enough to take on this endeavor of "MS awareness" for those of us living with MS.


((((hugs to all))))


Love, Lauren :)

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