Living With MS

Discussing all aspects of Multiple Sclerosis, various treatments, including accurate information regarding Tysabri.

Thursday, September 30, 2010




My Tysabri Diary...,

I completed my 52nd Tysabri infusion on Tuesday, 9/28. Everything went well with the exception of having to be stuck three times in order to get a good line going for my infusion, owie ... :/

I ran into the young girl (she's been on Tysabri for approximately 1 year) and her mother when I was having my infusion, and she told me that her tremors started to return around the third week of the month (in other words, she could tell she was definitely due for her next infusion). It only took approximately 45 minutes into her infusion to observe that her tremors had slowed down considerably. It is one thing to see this kind of drastic improvement happen right before your eyes, and another just to be told about seeing this improvement happen. I'm still smiling when I think about how wonderful it is for some patients to have this medication available when treating their MS.

I'm still relapse free as of October 16th, 2006. My MS is still stable and my infusion next month will mark my treatment time being as more than four years, yeah! I am very happy with this treatment, and my adherence to taking this medication once every 28 days is so very easy.


Well, I'm off to have a late lunch, and I'll probably take a nap afterwards. I send all my very best to everyone..., take care everyone, and enjoy your upcoming weekend.


((((hugs))))

Love, Lauren :)


2 Comments:

  • At 3:41 PM, Blogger Michelle said…

    Hello! I ran across your link on patients like me. I have my first infusion on the 4th and I am a little scared. I like reading your journal. It makes me smile and gives me hope. If you have any advice I will greatly welcome it. Thank you, Michelle

     
  • At 12:43 PM, Blogger Lauren said…

    Hi Michelle,it is so nice to meet you --

    Why are you a little scared? If you are afraid of developing PML, I really would not be afraid (remember, I am not a doctor)..., that is unless you have a severely suppressed immune system and if you carry the dormant JC virus (a lot of “ifs” there), it is my understanding that you can not developed PML.

    I am having my 53rd Tysabri infusion this coming Tuesday, and I am not afraid at all.

    If you would like to write to me about your concerns Michelle, you can contact me at:

    LGLBGL2003@aol.com

    I will do my best to answer your questions and ease your fears by providing you with proven data.

    Take care now, Lauren :)

     

Post a Comment

Links to this post:

Create a Link

<< Home