My Tysabri Diary...

5th Tysabri Infusion yesterday on 2/19/07...

I was pretty tired due to us having to drive in torrential rains for 90 mins. to get there for my infusion, and I have a nice bruise on my wrist delivered by a prick (that term works for both the male infusion nurse and the needle - owieee), so I turned in early...but I did want to report that I inquired again of the Infusion Admin if the 'other' Tysabri patients had been infused there yet (from my Jan. inquiry), and she said, "Oh yes several have - no problems either".......WOOOOOHOOOOO! Also - here is my comment posted on the Utah KSL.com (Tysabri) story- you can vote and comment too (this story should get a lot of publicity) The reporter already posted a correction and a comment (smiling)... http://www.ksl.com/index.php?nid=148&sid=909753&comments=true#postit Tysabri Report Comment by Lauren R. @ 8:32pm - Mon Feb 19th, 2007 The KSL reporter wrote: "Darren was given what is called the Tysabri therapy. Physicians have been trying it for a few years now. It doesn't work for all M.S. patients, but for some, like Darren, the chemo infusion really pays off." Please note: Tysabri is NOT chemo-chemo destroys B & T cells, basically wiping out the immune system. Tysabri destroys nothing, it is a Selective Adhesion Molecule (S.A.M.) that attaches itself to the damaging T cells that attempt to cross the Blood Brain Barrier and enter the Central Nervous System where they attack our myelin, leading to nerve damage and axonal loss (disability) for most of us. However, since Tysabri can successfully prevent a majority of them crossing the BBB, this stops the cascading effects of the T-cells from bombarding our CNS and if some of the T cells are able to make it through the BBB, Tysabri is able to migrate (move) them away from our myelin adding double protection there too. Classifying Tysabri as 'chemo' does a terrible disservice to MS patients looking for information on MS therapies. I have had 5 Tysabri infusions thus far. For accurate and correct info re: Tysabri - including Tysabri Patient Progress Reports, go to: http://www.mspatientsforchoice.org/...I am delighted at Darrel's recovery, but terribly disappointed in your reporter's "research". Sincerely, Lauren Roberts (MS sufferer for 31 years).

I'll post again when I catch up on my sleep.

(((hugs)))
Love, Lauren
A very proud member of http://www.mspatientsforchoice.org/