Living With MS

Discussing all aspects of Multiple Sclerosis, various treatments, including accurate information regarding Tysabri.

Thursday, September 30, 2010

My Tysabri Diary...,

I completed my 52nd Tysabri infusion on Tuesday, 9/28. Everything went well with the exception of having to be stuck three times in order to get a good line going for my infusion, owie ... :/

I ran into the young girl (she's been on Tysabri for approximately 1 year) and her mother when I was having my infusion, and she told me that her tremors started to return around the third week of the month (in other words, she could tell she was definitely due for her next infusion). It only took approximately 45 minutes into her infusion to observe that her tremors had slowed down considerably. It is one thing to see this kind of drastic improvement happen right before your eyes, and another just to be told about seeing this improvement happen. I'm still smiling when I think about how wonderful it is for some patients to have this medication available when treating their MS.

I'm still relapse free as of October 16th, 2006. My MS is still stable and my infusion next month will mark my treatment time being as more than four years, yeah! I am very happy with this treatment, and my adherence to taking this medication once every 28 days is so very easy.

Well, I'm off to have a late lunch, and I'll probably take a nap afterwards. I send all my very best to everyone..., take care everyone, and enjoy your upcoming weekend.


Love, Lauren :)

Wednesday, September 01, 2010

(me and my beautiful Teddy - '97 or '98)

My Tysabri Diary...

Hi everyone, I had my 51st Tysabri infusion yesterday, and all went well..., I must say that my infusion nurse at Kaiser Permanente is probably one of the best infusion nurses that they have. She is able to just stick me once, and boom, the infusion needle is in, and I'm on my way to receiving my infusion..., I just love that!

I saw that young girl there again at my infusion center, as well as her mom, and she is really doing well! She left shortly after my infusion began, and she walks and talks beautifully..., you really could not tell she had MS, woo hoo!

I am still a little tired today, so I think I'll go take a power nap now..., take care everyone!


Love, Lauren :)