My Tysabri Diary...

I had my second Tysabri infusion yesterday, 11/16, again ZERO side effects, yay! :)

I took it easy last night as the drive for my caregiver into the city for my infusion (which normally takes 90 mins one way, took an unbelieveable and grueling 2 1/2 hrs to reach the infusion clinic (one of the connecting freeways [the 210] was shut down, all 4 lanes this am), 2 1/2 hrs for the infusion as they were late starting me as I was late in arriving, as were most patients arriving out of the city, and 1 1/2 hrs to get back home. No side effects again, just a slight headache (which I believe had to do with being stuck in traffic all day which was barely moving at 2 mph)...., I sent our website my Tysabri Lot # and Exp. date and I'm keeping the cute little Tysabri vial that once held it's liquid gold, now flowing in my veins :)

On a side note, more problems plague Kaiser (see the article: IT disaster at Kaiser), as well as a local news story that aired [while I was receiving my Tysabri infusion!] wherein after So. Calif. Kaiser drs treated a homeless woman for 3 days (I believe), and then Kaiser in Bellflower transported her via ambulance to the middle of 'Skid Row', just dropped her off and left her there. I don't remember any other details of this news story today, other than a press conf. held by LA City Attorney Rocky Delgadillo BLASTING Kaiser for their unspeakable actions (he was major pi**ed off-I think he even filed criminal misdeamor charges against Kaiser today?), with Kaiser issuing a pathetic apology/statement indicating they won't do that anymore unless there is someone from an agency to rendevous with and pick up the continuing care when they drop a homeless patient/person off again...geeee ya think? Sheesh! CA health care at it's finest...NOT! Here's the story: http://www.usatoday.com/news/nation/2006-11-16-homeless-dumping-skidrow_x.htm

Okay, so today I promise I won't over-do (fingers crossed behind my back-heehee), and just do my p.t. exercises (maybe I'll just increase the repetitions from 7 to 10 tomorrow), yeeehaaaw!

(((hugs)))
Love, Lauren
A very proud member of www.MSpatientsforchoice.org