Living With MS

Discussing all aspects of Multiple Sclerosis, various treatments, including accurate information regarding Tysabri.

Sunday, December 31, 2006

My Tysabri Diary...

Thank you all for you comments on my Blog this year. Your words of encouragement mean more to me than you will ever know.

I have learned that together, we can face almost any challenge placed before us. I personally face challenges with faith, hope, love, and knowledge (and when appropriate, I dawn my "big girl panties" attitude! heehee) <--- I stole that line from my friend Mary who posts on one of the same MS forums I do (cracking up). I'm looking forward to my 4th Tysabri infusion on 1/19/07.

I pray for each of you that blessings abound for great health, much happiness, and good prosperity in 2007 and beyond.


Have a safe and joyous time ringing in the New Year everyone - happy happy - joy joy, woooooohoooooo!

(((Hugs & Love)))
Lauren
A very proud member of www.MSpatientsforchoice.org

Saturday, December 23, 2006



My Tysabri Diary...

I received a very special Christmas gift this morning...with a few background notes - I had been so stressed out recently due to the problems I had previously with Biogen making false inquiries of my doctor because some fool reported false information from my Blog to them that they never bothered to verify as being accurate first, and then ALL the problems I had last week with Kaiser's infusion center staff, and other stressors non-holiday related, I felt practically no improvements after my 3rd infusion Wednesday, and having what felt like a relapse last night.....but THIS MORNING.....,

MY ENTIRE BODY FELT STRONGER THAN IT HAD EVER BEEN OVER A YEAR AND A HALF, I COULD WIGGLE ALL MY TOES ON BOTH FEET, I COULD LITERALLY UNCROSS MY FEET WITHOUT THE ASSISTANCE OF MY HANDS, I COULD SLIDE BOTH FEET FROM SIDE TO SIDE, AGAIN WITHOUT USING MY HANDS TO MOVE THEM, AND BEST OF ALL, I COULD TOUCH MY KNEES TOGETHER REPEATEDLY APPROXIMATELY 10 TIMES!

WOOOOOOOOOOOOOOHOOOOOOOOOOOOO!!!

Even IF it takes 20 infusions or more of Tysabri for me to be able to walk again, I will
always hold on to that HOPE.

Merry Christmas everybuddy, I pray the New Year for each of us holds our hopes and dreams come true in every way possible, and that we achieve those dreams and goals (HUGE Smile).

For all my friends here and your families...,

My Christmas Wish

I hope the days come easy, and the moments pass slow
And each road leads you where you want to go
And if you’re faced with a choice, and you have to choose
I hope you choose the one that means the most to you...,

And if one door opens to another door closed
I hope you keep on walkin’ ‘til you find the window
And if it’s cold outside, show the warmth of your smile

But more than anything, more than anything....,

My Christmas wish for you
Is that this life becomes all that you want it to,
Your dreams stay big, your worries stay small
That you never need to carry more than you can hold...,

And while you’re out there gettin’ where you’re gettin’ to
I hope you know somebody loves you
And wants the same things too
Yes this, is my Christmas wish.

I hope you never look back, but that you never forget
All the ones who love you - And the places you've left,
I hope you always forgive and you never regret
And you help somebody every chance you get...,

I hope you find God’s grace in every single mistake
And that you always give more than you could ever take,

But more than anything, yes more than anything ....,

My Christmas wish, for you
Is that this life becomes all that you want it to,
May your dreams stay big, your worries stay small
That you never need to carry more than you can hold ...

And while you’re out there gettin’ where you’re gettin’ to
I hope you know somebody loves you
And wants the same things too
Yes this, is my wish ...,

Yes this, is My Christmas Wish.

Merry Christmas - Happy Hanukkah. Whether we have met before or not, friend or foe, not only is this My Christmas Wish for each of you, this is my deepest and most sincere Wish for each of you and your loved ones for every single day of your lives.

Holidays Cheers are being sent from me to you and your families with much Love, Respect and Admiration.
(((hugs)))
Lauren
A very proud member of: www.MSPatientsForChoice.org
(adapted from Rascal Flatts-My Wish)

Thursday, December 21, 2006



My Tysabri Diary... Last night 12/20 at 7:30 pm,

I just got home from my 3rd infusion of Tysabri...After waiting over 1/2 the day at Kaiser, they finally started my Tysabri at 1:30 p.m. No problems just had to see my neuro afterwards...which by the time she could fit me in after the infusion center screwed up not only my schedule, my caregiver's schedule, and my neuro's schedule, it was after 5 pm so, of course, coming home we hit all the rush hour traffic again...(sigh).

There was a different nurse there that gave me my infusion, the jerk couldn't hit a bullseye with a brick standing 2 feet away. When he tried to set the infusion needle in my arm initially, I said, "Are you
insane???" Give it to me in my hand or wrist...my veins might be small but they are certainly not collapsed! Sooooo, after 15 mins of intense pain, the Benadryl drip started, I thought, "Self, you're being punished"...until.........,

A young girl took the infusion seat across from me (pretty black girl, thin, she had Crohn's Disease and was receiving her Remicade infusion). Well, I thought
I yelled loud when this jerk stuck me...this pretty, young, demure patient just about peeled the paint off the walls with her screams! He was soooo awful, she kept asking "Is it in the vein yet?" When he'd answer "no, it only broke the skin", this poor girl just kept saying, "Are you kidding me?!?!?!" She reminded me of someone...hmmmmm, who could that possibly be? (heehee)

Finally, she said, "Look, try my right hand instead, because if this damn i.v. is not in my vein in the next 5 mins with my Remicade going through it, duck a**hole because I'm taking a swing at your @#!$^%* head, and I'm not telling you which head either!" Ray and I looked at each other and just cracked up laughing (although I swear I saw him wince at her words ever so slighty before we both started laughing).

All in all, I'm glad today is almost over. I'm drained of emotion (other than getting into a mild verbal altercation over my Jan. infusion being set 31 days away). Ummm, I don't think so! I'm sure you all know who won
that battle - heehee.

Oh, and I found out 2 other Kaiser patients in another Kaiser facility are being infused with Tysabri also...wooooohoooo!

(((hugs)))
Love, Lauren

A very proud member of www.MSpatientsforchoice.org

Monday, December 18, 2006




My Tysabri Diary...

What should have been my third infusion of Tysabri turned into another Kaiser nightmare instead...,

After a 1 and 1/2 hr drive one way to my 3rd infusion... I arrived, checked in, wrist i.d. and everything, I was taken into a private infusion room with a door that closes...hmmm I said to my caregiver Ray..."What's up with this? Why not like before my other two infusions..one of the regular infusion chairs where 4 patients are all receiving different infusions together?" He said, "Maybe they want to keep a close eye on you since this infusion is the 12 week mark?" Okay, that sounded plausible.....until....15 mins later 4 infusion personnel walked in my room and closed the door......hmmm, now I reeeally had an uneasy feeling...., One of the infusion nurses said, "Lauren, we have some bad news, we can't do your 3rd Tysabri infusion today....". Now I understood the reason for the room with a door that closed because they had anticipated my reaction.....I said, "WHAT?????? YOU'VE GOT TO BE KIDDING!!!! DO YOU ALL REALIZE MY CAREGIVER JUST SPENT AN HOUR AND A HALF IN RUSH HOUR TRAFFIC TO GET ME HERE???? WHY THE &^*& CAN'T I HAVE MY INFUSION?????? AND THIS BETTER BE DAMN GOOD!"

The nurse then turned the "Kaiser" explanation over to the Infusion Administrator to continue...."Ms. Roberts, your med has not arrived, as the girl (receptionist) who set your appt. is new and did not know she needed to advised us in advance that it was a "specialized infusion" so your Tysabri won't be here until Wednesday, the 20th, so you have to come back then."

WTF? I said, "LOOK GDI, I AM SICK OF KAISER'S DELAYS, THE MORE DELAYS I RECEIVE, THE FURTHER BACK MY INFUSIONS ARE PUSHED - I'VE ALREADY LOST ONE WEEK AND AT THIS POINT, I'VE BEEN SHORTED MY 13 INFUSIONS PER YEAR, I DOUBT I'LL RECEIVE 12, AND I'M LUCKY IF I RECEIVE 11 - HOW DARE THE PATIENT (ME!) BE MADE TO PAY FOR YOUR ADMINISTRATIVE INCOMPETENCE!" (I'm thinking Biogen must be happier than a pig in sh*t right about now, ESPECIALLY after they tried screwing me by blantantly sent false inquiries to my neuro from my Blog recently...how many others are being screwed out of their drug of choice [Tysabri]???)

I was then advised that 'measures' are now in place to ensure this doesn't happen again, and to call ahead next time to make sure the med is here. WRONG RESPONSE....I THEN YELLED AT THE TOP OF MY LUNGS, "
OOOOOH NO!!! NO NO NO NO NO NO!!!! I REFUSE TO DO KAISER'S JOB FOR THEM, IT IS YOUR RESPONSIBILITY TO MAKE GD SURE THE MED IS HERE PRIOR TO THE PATIENT'S INFUSION, AND IF YOUR STAFF IS INCOMPETENT, PERHAPS THIS INFUSION CENTER SHOULD BE SHUT DOWN, AND FURTHERMORE, SINCE BIOGEN IS BEING SO F*&^%$# STRICT ABOUT THE TOUCH PROGRAM, THAT THEY SHOULD HAVE KNOWN I WAS DUE FOR MY INFUSION AND THEY SHOULD HAVE ALERTED THE DISTRIBUTOR TO MAKE SURE THE MED WAS HERE, CAPICE?!?!?!"

Then she proceeded to "tell" me all "about Tysabri"...I was so exhausted by then, I just threw up my hand in her face and said, "
SAVE IT! Barbara, I'll see you Wednesday, come on Ray - let's go, I feel a relapse coming on thanks to ALL THE STRESS I've just been through". I cried all the way home, I'm still crying. I don't feel like doing anymore posting right now, (((hugs)))

Love, Lauren :(
A very proud member of www.MSpatientsforchoice.org

Saturday, December 16, 2006




My Tysabri Diary...

I go for my 3rd Tysabri infusion Monday, 12/18 -
woooohoooo!

My friend Noni, who sends out mass mailings for our MS chatroom, recently sent out the below MS article/interview by Dr. Larry Steinman, and I sent her my comments on it, which she in turn also sent out en mass.

I am not a doctor (nor do I play one on T.V-heehee), but I believe Larry Steinman, MD (the father of Tysabri/Antegren) just produced the reason why Tysabri works so well for MS patients.

I don't think I'm reaching here as the connection to Tysabri is pretty obvious...Perhaps he did this "unknowingly", but from a MS patient's point of view, this is a HUGE BOOST for Tysabri's reputation , as it proves why Tysabri is so effective! (I have bolded and italicized portions of the text below for edification purposes
- think S.A.M. (Selective Adhesion Molecule = Tysabri), no death to immune cells, no crossing of the damaging T cells from the BBB into the CNS, improvement in MS symptoms, and reduction in lesions/relapses, slowing of disease progression, and improvement in Quality of Life).

December 03, 2006 02:00 PM Eastern Time
Molecule Linked to Autoimmune Disease Relapses Identified at Stanford

STANFORD, Calif.--(BUSINESS WIRE)--The ebb and flow of such autoimmune diseases as multiple sclerosis, lupus and rheumatoid arthritis has long been a perplexing mystery. But new findings from the Stanford University School of Medicine bring scientists closer to solving the puzzle, identifying a molecule that appears to play a central role in relapses.

The study, to be published in the Dec 3 advance online edition of Nature Immunology, lays the groundwork for a way to determine when a relapse is about to occur, and could eventually lead to a treatment to prevent relapses. “ Right now, there is no good blood test to evaluate when a person is going to have a flare-up,” said senior author Larry Steinman, MD, professor of neurology and neurological sciences. “If we had one, we might be able to give them prophylactic preventive medication.” The current study had its genesis five years ago: In a paper published in 2001 in the journal Science, Steinman found that a protein called osteopontin was abundant in multiple sclerosis-affected brain tissue, but not in normal tissue. Since then, other groups have confirmed that osteopontin is elevated just prior to and during a relapse of the disease in M.S. patients.

Although the protein had been known to play a role in bone growth, it was unclear why it would be associated with multiple sclerosis, which results when the immune system attacks the protective myelin sheath surrounding nerve cells.

To explore this question, Eun Mi Hur, PhD, who was then a graduate student in Steinman’s lab, began using a mouse model of multiple sclerosis (experimental autoimmune encephalomyletis, or EAE) to investigate how osteopontin could cause these flare-ups.
She and Steinman gave osteopontin to mice that had already experienced paralysis, similar to that of an M.S. patient, and found that the mice then experienced a relapse of the disease.

The researchers also found that the relapse would occur sometimes in an area of the brain other than the site of the original attack. For example, after receiving the osteopontin, some animals that had previously suffered paralysis became blind from a condition called optic neuritis. One feature of multiple sclerosis is that the flare-ups [relapses] can affect different parts of the nervous system at different times.

“When I saw that all mice with EAE relapsed and died from the disease after about a month of osteopontin administration, I was surprised,” said Hur, the study’s first author who is now a postdoctoral scholar at Caltech. “I got a strong belief that
a high level of osteopontin in patients’ blood and tissue is a major contributor of the relapse and progression of the disease.” Through the mouse studies and molecular characterizations, Hur and Steinman showed that osteopontin — produced by immune cells and brain cells themselves — promotes the survival of the T cells that carry out the damaging attack on myelin; by increasing the number of these T cells, osteopontin increases their destructive potential. These results could be applicable to many other autoimmune diseases, including rheumatoid arthritis, type-1 diabetes and lupus.

Indeed, the effect of osteopontin may severely alter the way the immune system works.
Normally, after the immune system does its job — eradicating a microbe, for instance — the response is then dialed down. If this didn’t happen, the immune response would go on indefinitely. Imagine a cold or an attack of poison oak that would last forever.

One of the ways that the immune response is muffled is that the activated T cells die in a process known as apoptosis. That is precisely what osteopontin seems to prevent. Osteopontin lets the T cells linger in the blood, ready to attack again. “We don’t know exactly what triggers that new attack but the cells certainly are around and ready to do it,” said Steinman. So scientists now face the challenge of figuring out how and why osteopontin is produced. “ We’re back to the chicken-and-the-egg problem,” said Steinman. “We know the egg, so why did the chicken lay it? That is a trickier problem to work out.” Even without knowing the answer to that question, there is one inviting practical use of their observations: Osteopontin could be used as a marker of an impending relapse. What’s more, if the protein could be blocked, it might thwart the relapse from ever occurring.


Steinman’s lab is working to develop antibodies to inactivate the protein’s effect. “It’s still a long road between saying we want to do it and getting the antibodies, getting it approved by the FDA and getting it tested,” said Steinman, “but we are determined to do that.” Still, Steinman offered a caveat. Researchers may find that blocking osteopontin has undesirable side effects. The protein may serve other purposes in addition to promoting survival of immune cells. It could also be vital to the body’s ability to produce myelin, a function that could cause severe problems if disrupted.

“Like a lot of important biological molecules, osteopontin has a Janus-like quality — a bad side and a good side,” Steinman said. “We’re going to be extremely lucky if we give the antibody opposing osteopontin and derive just the good side: We stop the autoimmune attack but don’t interfere with the survival of other cells.” Further study will determine whether thwarting osteopontin’s effect yields new types of treatments for autoimmune diseases, but regardless, it is likely to lead to discoveries in a host of areas. “I think osteopontin will turn out to be important in a lot of processes, spanning autoimmunity to stem cells,” said Steinman. “It’s probably going to turn out to be a very basic growth factor.”

How's that for mud in your eyes ABCR's.....HA!


(((Love & Hugs)))
A very proud member of www.MSpatientsforchoice.org

Sunday, December 10, 2006



My Tysabri Diary...

Thank you ALL for your Happy Birthday wishes, and I hope you all had a safe and happy Thanksgiving holiday.

Sorry I haven't updated my Blog recently, but I'm fine, just
IRRITATED AS HELL AND ROYALLY PISSED OFF WITH BIOGEN AND THE IDIOT A**HOLE THAT REVIEWED MY BLOG AND ERRONEOUSLY REPORTED TO BIOGEN (WHO DIDN'T EVEN BOTHER TO INVESTIGATE THIS FALSE INFORMATION PROVIDED TO THEM!) THAT I HAD AN "ADVERSE EVENT" WHILE ON AVONEX THAT I FAILED TO REPORT...

W.T.F.??????

From Emails I sent and received, here is the series of events that transpired due to Biogen's negligent actions (AND THE NEGLIGENT ACTIONS OF THE IDIOT THAT REPORTED THEM TO BIOGEN-GOD HELP YOU IF I EVER FIND OUT WHO YOU ARE!):

Subj: ok xxxxx, Biogen just crossed the line
Date: 11/21/06 10:05:04 PM Pacific Standard Time
From: LGLBGL2003
To:
xxx



and i am so friggin pi**ed off right now, i'm STILL seeing stars! sorry for my language, but my neuro called me tonight at 8:20 PM my time (she was still working and she had called me at 7:30 AM today!)...

when i asked her what was wrong, she told me the following [paraphrasing]:

the patient (me) had reported on her blog that while on avonex, she had fallen, had been hospitalized, and was now confined to a w/c, and had failed to report these adverse events.

W. T. HE** ????????

BIOGEN IS TWISTING WHAT I POST ON MY BLOG TO SUIT THEIR WANTS AND NEEDS AS I NEVER POSTED THAT IN THE SEQUENCE THEY STATED, AND I HAVEN'T BEEN ON AVONEX SINCE 2004!!! THIS IS THE 2ND TIME BIOGEN HAS CONTACTED MY NEUROLOGIST WITH FALSE INFORMATION!


THE UNMITIGATED GALL AND NERVE OF BIOGEN!!!......

I AM
MAD!

***
This is what was sent/reported to my neurologist by Biogen on a form entitled "DRAFT" under B. #5: "
A female patient on AVONEX (formulation, dosing regimen, and dates of dosing unknown) reported via an Internet *blog* that she was hospitalized due to a fall (onst Sep 2006). Treatment was not reported. The outcome of fall is unknown. Additionally, the patient experienced a horrible (MS) relapse resulting in being confined to a wheelchair. AVONEX therapy was discontinued."

My email was forwarded to Biogen, here is their response (note my comments to same are inserted there in colored Caps):

From: xxx@biogenidec.com
Sent: Wednesday, November 22, 2006 10:41 AM
To: xxx
Subject: Re: ok xxx, biogen just crossed the line

Hi xxx -

Legal and regulatory requirements are sometimes counterintuitive and, therefore frustrating to all, including us. We are not a corporate entity, we are a collection of human beings (THAT ARE EMPLOYED BY BIOGEN, IDEC, EITHER DIRECTLY OR INDIRECTLY THROUGH THEIR AVONEX AGENT, MSACTIVESOURCE!!!) who are trying to do the right thing!!

The reason for the situation below is that we, as the employees of the manufacturer, have an obligation to explore every adverse event of which we become aware.
(I HAVE NEVER HAD AN ADVERSE EVENT TO EITHER AVONEX OR TYSABRI!!!!! EVER!!!) This includes information posted on a website. (THIS IS NOT POSTED ON MY WEBSITE EITHER AS IT HAS NEVER HAPPENED!!! The follow-up process is for the employee to tell drug safety experts at Biogen Idec, who then contact the provider to determine if the event is indeed an adverse event attributable to the product. In this case, it would seem not, (NO SH*T! GEEE, YA THINK MAYBE BIOGEN SHOULD HAVE INVESTIGATED THIS FIRST FOR ACCURACY???) but it is only through this process of follow-up that we maintain our commitment to fully understanding all reported and non-reported patient experiences and better understanding the safety profiles of our products. (THIS IS BS, GIVE ME A FRIGGIN BREAK!!! SEE ABOVE!!!) We have an obligation, as does every other manufacturer of a pharmaceutical or biotech product, to report the summary of aggregated analysis of all such events to the FDA on an ongoing basis. This has nothing to do with TYSABRI. (BS AGAIN, THIS HAS TO DO WITH AVONEX SALES WHILE TYSABRI HAS BEEN APPROVED! I AM NOT STUPID, BIOGEN HAS AN OBLIGATION TO INVESTIGATE THE 'PURPORTED' INFORMATION FIRST!) You should note that we do not/will not determine whether a patient can or can't receive therapy. That is a decision made by the presciber and the patient. (HAVING THESE FALSE AND ERRONEOUS "BIOGEN" LETTERS IN A MS PATIENT'S MEDICAL RECORDS AND ANNOYING OUR TREATING PHYSICIANS AND APPROVING INS. CO'S IS JEOPARDIZING OUR "CURRENTLY" APPROVED THERAPY! AND BIOGEN KNOWS THIS) Our goal is to provide information about the product, facilitate a system to assure that physicians and patients are aware of warnings and recommendations, and assure that only patients with relapsing forms of MS receive TYSABRI. (THAT'S ODD, DIDN'T XXX JUST STATE: "This has nothing to do with TYSABRI." ??? AS STATED PREVIOUSLY, THEIR ARGUMENTS DON'T HOLD ANY WATER OR TRUTHS WHATSOEVER!!!) In terms of safety information, we collect this from all patients through TOUCH to better understand the safety profile of the product. FURTHERMORE, THIS BS WITH BIOGEN STARTED BEFORE I WAS EVEN ENROLLED IN THE TOUCH PROGRAM!!!)

Please rest assured that the intent is right, even though the process is sometimes frustrating.
(THE PROCESS IS COMPLETELY WRONG, ESPECIALLY WHEN IT BEGINS WITH ERRONEOUS FACTS GATHERED BY BIOGEN ITSELF, AND PERPETUATED EVEN AFTER THE CORRECT INFORMATION WAS PROVIDED BY MY NEURO THE FIRST TIME THIS BS WAS STARTED BY BIOGEN IN 2006!!! AND THIS MUST CHANGE, NO IFS, ANDS, OR BUTS ABOUT IT!)

Please feel free to pass this information along to Lauren...

Best wishes for a Happy Thanksgiving.

XXX
________


As reported back to Biogen by my neurologist FOR THE 2ND TIME THIS YEAR, "this is NOT AN ADVERSE REACTION TO AVONEX, THE PATIENT HAS NOT BEEN ON AVONEX SINCE 2004! Etiology: Progression of disease."

This is for ALL IDIOT A**HOLES employed by/or reporting to Biogen (or other companies) that are viewing my Blog THAT CONVENIENTLY OMITTED THE FOLLOWING INFORMATION LOCATED IN [RED]:
"A female patient on AVONEX [I STOPPED TAKING AVONEX IN MID-2004] (formulation, dosing regimen, and dates of dosing unknown) reported via an Internet *blog* that she was hospitalized due to a fall [FROM A RELAPSE] (onset Sep 2006). Treatment was not reported. The outcome of fall is unknown. Additionally, the patient experienced a horrible (MS) relapse [IN JUNE OF 2005] resulting in being confined to a wheelchair. AVONEX therapy was discontinued [IN MID-2004]." HOW MUCH MORE CLEAR AND CONCISE MUST I BE, BIOGEN??? WAKE UP AS THERE IS NO EXCUSE IF THIS EVER HAPPENS AGAIN.


For the record here, it is not my
intent to antagonize anyone at Biogen, BUT MY POINT IS: regarding Biogen's "STRANGE" actions, Biogen cannot just 'shoot from the hip' whenever they feel like it without reviewing 'gathered' information from an idiot FIRST for accuracy, without paying the consequences - they get what they give..they need to change their UNETHICAL practices.

Biogen is
NOT required to send false inquiries to treating neurologists of Tysabri patients that could 'potentially' disrupt the patient's treatment regimen, as well as sending this false inquiry to the FDA (which erroneously remains in the patient's medical history) . Biogen has an OBLIGATION TO fully review the 'infomation' being reported to them for ACCURACY BEFORE they "rush to judgement" and start interferring with the patient/doctor relationship, which results in an additional burden and stress already being carried by the patient (that burden AND stress being the disease of MS).

Now that the above is out of my system, I am estatic to report that I just received 2 emails from MS patients (now friends-smiling) : 1) she just had her first infusion, and WOW, her partial words: "
I had NO side effects but I did notice the lame leg started to ache a bit and then it went away... well, after finishing and going through the after wait I stood up! And the leg was strong! Went out to eat, had a ball (in my scooter of course can't be too careful.) Went home and could lift my entire leg onto the couch by myself! Just like the left leg which has been fine. Next day my husband helped me walk through my mom's garage and into her house (used the quad cane since balance isn't back that much yet) I am sure a lot was excitement and partly psychological but boy was I excited! Next day I was a bit tired (all that exercise) and the leg is still stable. Is it possible it could start working that fast? Anyway,, I am thrilled (:+)))))))))))))."...

And the 2nd email from someone (who just saw the first neuro that saw me back in 1976, whoa! - lol) that has been fighting to get her Tysabri: "
Hi Lauren! Well after one month of daily conversations with the TOUCH people, insurance, and Dr. xxxxxxx office, I am starting on Tysabri on Dec. 13!!!! YEAH!!!!! I look at your blog once a week, and I hope you are well, and that Tysabri s still helping you. You have helped me perservere on and finally the day is near! Thank You!! Happy Holidays! xxxxx".

My guess is they both got an early Christmas gift, eh? I am due for my 3rd Tysabri infusion soon. Until then, take good care of each other...,[smiling]

(((lots of Love & Hugs)))


A very proud member of www.MSpatientsforchoice.org