Living With MS

Discussing all aspects of Multiple Sclerosis, various treatments, including accurate information regarding Tysabri.

Wednesday, December 26, 2007



My Tysabri Diary...
Nothing new to report about my 16th Tysabri infusion today, as I stated before, they are becoming pretty routine now (I like that!). No mudslides and pizza tonight as we are having leftovers from Christmas dinner last night (I taught Ray how to make my pineapple baked ham with maraschino cherries, my sweet potato pie with marshmallows, and my broccoli/cheddar cheese casserole). These three recipes are special and I only make them once a year (errrr, Ray made them this year as I can no longer cook). But they are Sooooo good and so rich! I think he is going to teach his wife how to make them now - heehee.

I was a little worried about leaving Noël home alone for the first time since she arrived here... I was contemplating coming home and finding our little Christmas tree tipped over, with all the ornaments broken that Chuck's wife Sheri had so painstakingly selected. But we only arrived home to find Noël sleeping on my bed with her little mouse...soooooo cute! When she saw me, she immediately jumped into my lap, mouse in mouth-LOL.

I did find out that my small infusion center now has four additional Tysabri patients (all added within the last month!). I wonder if they will be able to handle more because the infusions center today was jam packed full of patients.

I also chatted briefly with another Tysabri patient that was there, but she wasn't in a very good mood (I presumed she was having a bad MS day, as it was pretty cold outside and severe weather changes can definitely affect MS symptoms in a majority of most MS patients). She was also disappointed that she hasn't had any improvements after only four infusions.

I told her to never lose hope and that she might start seeing small improvements by her sixth infusion, but they could happen at any time. I told her that even though I was receiving my 16th Tysabri infusion, my MS is now stable and I haven't had a relapse nor any disease progression in over a year. Tysabri is doing exactly what it was designed to do... prevent further relapses and their accumulating disabilities, including slowing/stopping the disease process with superior efficacy of 67%. I also told her that I never lose hope that I will start to see more small improvements, and I hope to walk again one day. Tysabri = Hope.

She definitely seemed to brighten up a bit, but I still pretty much left her alone after that to contemplate what I had told her, but I also told her I would see her next year, same time, same place (that made her smile again), and if she had any questions about Tysabri, I would be happy to try and answer them (cautioning her that I was not a doctor). We exchanged names, and I left... wanting to get home for a quick bite of dinner, and then turn early.

That's all for now, other than I can hardly wait for tomorrow!

I hope everyone had a fantastic Christmas yesterday... woooohoooooo!

Lauren :)

A very
proud member of http://www.MSpatientsforchoice.org/

8 Comments:

  • At 6:31 PM, Anonymous Anonymous said…

    Merry Christmas, 1 day late. We had 22 for the evening meal in our smallish suburban home.[It works, but it's a tight fit!] Your meal sounded yummy....so nice Ray is turning out meals under your creative eye. Take care Lauren and have a Happy New Year!

    Deb

     
  • At 7:19 PM, Blogger LISA EMRICH said…

    Hi Lauren,

    I've decided to start a Blog Carnival specifically for those with MS or those who discuss MS. You are invited to participate. Information is available at http://brassandivory.blogspot.com/2007/12/announcing-new-carnival-of-ms-bloggers.html

    thanks,
    Lisa

     
  • At 6:22 PM, Blogger Blinders Off said…

    I am very happy Tysabri is working well for you. If I decide to give in and take Tysabri, you are drafted as my support person.

    Happy New Year!

     
  • At 8:33 PM, Blogger Jaime said…

    WOW! 16 infusions is great! I am glad to hear that you have found something that seems to work for you. :)

    I hope that you had a very Merry Christmas and the New Year brings you nothing but the best.

    Jaime

     
  • At 3:08 PM, Blogger Lauren said…

    Hi Deb, 22 people for dinner?!?!? Oh my goodness, I had trouble with 10 people, and that's what I could still stand, cook, and entertain them all, WHEW!

    Hats off to you Deb, big kudos from me!

    Happy New Year to you too!!!

    Lauren :)

     
  • At 3:10 PM, Blogger Lauren said…

    Hi Lisa, thanks for the invite, I'll check out your blog :)

    Have a happy and safe new year!

    Lauren

     
  • At 3:15 PM, Blogger Lauren said…

    Hi D!

    "you are drafted as my support person"... ha ha, I've never been inducted into the draft before, but when it comes to the fight against MS, I'm your girl! ;)

    Take care D, and have a happy, safe, and healthy 2008!

    All my best dearheart, Lauren :)

     
  • At 3:18 PM, Blogger Lauren said…

    Thank you so much Jamie...I can hardly believe I've had 16 infusions already, time flies when I'm not feeling sick all the time!

    A very happy, safe, and healthy 2008 to you as well!

    All my best, Lauren :)

     

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