My Tysabri Diary...

Well...I could not take another step late Sunday night, but I took a tiny one Monday with a lot of effort again on my part.

However, I am not discouraged in the least, because I could stand Monday unassisted by my caregiver for up to 1 and 1/2 minutes while holding onto a grab-bar (he had a stopwatch-lol), without my legs spasming and without my knees buckling under me during the time I was standing. Nice trade off if you ask me, considering I could only do this for a few seconds the day before my 2nd Tysabri infusion (11/16)!

My neurologist called me this morning (at 7:30 a.m.- ugh!) to see how Tysabri was working out for me...I told her it was THE BEST BIRTHDAY GIFT I EVER RECEIVED IN MY ENTIRE LIFE! I started to cry happy tears a bit when I thanked her profusely in believing in me and for believing in Tysabri, but especially for allowing me the opportunity to have Tysabri again and for the chance of making some physical improvements and improving my quality of life. I explained to her all of my small and slow, but significant, improvements while on Tysabri, and that each new day brings even more hope to me, and that I expect (hope) to experience even more improvements with subsequent infusions. She said she was glad and happy for me, wished me a happy birthday and then ended the call (I wondered for a few minutes after our call ended if she only called me so that she could report my progress to the ins. dept. of Kaiser in order to justify them authorizing further infusions of Tysabri). I don't know - that's a distinct possibility - lol, but right now, I really don't care - it's my birthday today and I'm too happy to "over-analyze" anything!

Thank you again for all of your well wishes, and to each of you that sent me Happy Birthday wishes for today. Some of you are just so unbelieveably wonderful and caring individuals, my heart is overflowing with great joy and a renewed determination not to waste one single minute that is further granted to me. Happy Thanksgiving to each of you!

Come on December!...Go Tysabri! Wooooohooooo!

(((hugs)))
Love, Lauren
A very proud member of www.MSpatientsforchoice.org